Research

"Research is vital in providing the evidence we need to transform services and improve outcomes"  1.

The National Research Programme

 

The National Research Programme for the Serious Illness Care Programme UK is led by The Clatterbridge Cancer Centre and the Marie Curie Palliative Care Institute Liverpool, in collaboration with Ariadne Labs at Brigham & Womans’ Hospital and the Harvard T.H. Chan School of Public Health, in Boston, Massachusetts, in the U.S.  This collaborative group is driving a structured national programme of research to support the implementation of the Serious Illness Care Programme in the UK.

Using robust and established research methods, the multidisciplinary team of expert researchers have already refined the Serious Illness Care Conversation Guide into a format suitable for use in the UK.  A feasibility study is under way to begin the process of developing a UK-centric evidence base to support the Serious Illness Care Programme UK implementation, and to complement the established evidence base generated from research studies in the US.   

Opportunities for participation and collaboration within the National Research Programme will arise as the research and implementation develop. 

 

For further details please contact: 

Dr Stephen Mason:
Lead for Research
stephen.mason@liverpool.ac.uk

Dr Alison Coackley:
Chief Investigator and Clinical  UK Programme Lead
alison.coackley@clatterbridgecc.nhs.uk

 

1.  NHS Five forward view

Available from https://www.england.nhs.uk/wp-content/uploads/2014/10/5yfv-web.pdf

{Accessed 26th August 2016]

 

Programme Output

 

Better conversations, better care: Evaluation of Clinician Training within the Serious Illness Care Programme UK

It was presented at the European Conference of Palliative Care in Madrid May 2017

Serious Illness Care Programme UK: Assessing the “face validity” and acceptability of the Serious Illness Conversation Guide for use within the UK healthcare setting

Presented at National Cancer Research Institute (NCRI) Conference – 6th-7th November 2016, Liverpool

Communication between clinician and patients with advanced cancer: assessing the “face validity” and acceptability of the Serious Illness Conversation Guide to improve clinical communication

Presented at European Cancer Congress (ECCO) – 27-30th January 2017, Amsterdam

Serious Illness Care Programme UK Assessing the” face validity” and acceptability of a Serious Illness Conversation Guide

Presented at European Association of Palliative Care World Congress Madrid May 2017

Serious Illness Care Programme UK. Implementation of a communication model for patients with advanced cancer: a feasibility study

Presented at Institute of Translational Medicine (ITM) Research Day – 6th July 2017

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One-year pilot funded by NHS England.